Friday, October 31, 2008

First Halloween






Even though we aren't going to go trick or treating we still dressed her up.

Tuesday, October 21, 2008

Hard to watch

Oh my goodness I didn't, nor did Autumn, like the injection. She had one in each leg and both cries were the worst things I have ever heard. It was a turn your head and cringe until it was done. I felt so bad for her. I immediately scooped her up and she just continued crying. It was the absolute worst thing. Once we got out and into the car we had a few fits on the way home but other than that had settled down. Did a little talking in between the fussing. Once home she was completely different little girl. She stayed up until about 8:15 completely laughing and playing then it went bad. She did fall asleep easily, and we will see how long it lasts. I stole the time to update everyone. She only had weight done today.........14 lbs 12 oz! She has gained a whole pound in two weeks. That is great.
She has just been doing so well lately it lets you forget all the stuff she has gone through. The way her scar is healing is very impressive. The surgeons at UVA really did quite a job. It will barely be seen when she gets older.
She only needed part of the dosage that was sent of the synagis so next order they won't need to send as much. Apparently as long as the vial isn't punctured it can be kept in the refridgerator for up to a certain amount of time. Her next dose is on November 21st and I already don't look forward to it. It may have to be Daddy's turn that day!

Many Thanks

We did not get to go to her doctor's appointment yesterday. They called to let us know that the injection did not arrive as it should have. They have already called this morning to let me know it has arrived. We have a 4pm appt today.

On another note we would like to say a special Thank you to all of the Fauquier county employees that participated in the Working together program for Autumn. We received the letter yesterday and I was sincerely touched and so very appreciative. I will be sending a Thank you letter to Melissa Dargis' attention in the next few days. Thanks again! We really appreciate everything that everyone did to put that together for us. Also a special Thanks to Deborah Dotson for getting us set up on the program to begin with, along with her daughter and Autumn's Aunt, Briana Long. Thanks to all!

Friday, October 17, 2008

Ready, Set.....More Shots!

I heard from the company that makes the Synagis injections today. They finally got everything straightened out. The shot was supposed to be delivered to her doctor's office today for her Monday afternoon appointment. They were calling to tell me that for some reason the Anthem denied the claim at first then approved it as they should have since they sent me approval letters months ago. They were confirming that they will have the shot there by Monday at 10:30. We found out that our Co-pay is 20% and which is currently $200 per shot. The dosage is done by weight and so is the cost. The more she weighs the more it goes up. She will need one injection once a month until March. We did find out that one of our sitter's sons are prone to getting RSV so we are glad we chose to get her the shots.
Other than that she has been enjoying her fruits and cereal. She is still getting the hang of the whole spoon thing but all in all I am impressed. She has been sleeping better at night, unless she has gas issues, which has been the last two nights. She goes to sleep around 7-8 and sleeps three hours then does two's still. But hey, we have reached a steady three hours the first time down so it is getting better. She is 19 weeks now and growing fast. I am curious to see how much she weighs on monday now that she has been eating solids!
Oh yeah she laughs now. So cute. Starts giggling and squealing when she sees someone she recognizes. Getting bigger everyday! I will update everyone after Monday's appointment. Have a great weekend!

Friday, October 10, 2008

Friday, October 3, 2008

Hyper Active

Zack took Autumn to the doctors yesterday. She has not been sleeping at all the last few nights so we thought we may want to make sure there isn't an underlying problem keeping her up. She was also due for her 4 month shots so off they went. The doctor she saw said she is a hyper active baby that is why she doesn't sleep. That she is the most active 4 month old he has seen in a long time. She thinks she needs to be up doing something. He said to get her out of my bed ASAP. That when she senses me there or sees me she wants to wake up and be active again. Last night she slept in her crib for a few hours then in the co-sleeper in my room for a few hours then I was so tired from getting up to go give her a pacifier back that I finally said oh well two hours in my bed won't hurt anything. She has also been given permission to start on fruit baby food and cereal. We had been giving her cereal by bottle (I know everyone says something different about this, it was a tough decision) We are switching her to by spoon over the weekend. Normally when she gets it at night she is too tired to care about the spoon. She weighed in at 13lbs 12 oz! In the 75th percentile for weight and is 26" tall. She is in the 95th percentile for height. That I am sure will change. Either way she is growing perfectly and caught up on everything. We are so very thankful of the way everything has turned out so far. I thank god every day for taking care of her during her hard times and seeing her through it. The only pending issue is that for her Synagis vaccine shot she is supposed to get once a month from Oct to May was denied and she didn't get it. She apparently was approved through my health insurance and denied from the company that makes it. It is so expensive that you can not get it unless approved. They are pushing more papers to get her approved. If she does not qualify having open heart surgery so young I feel really bad for the babies/kids who do qualify. They must be really bad off. Hopefully they get it settled quick since RSV season is here!