Cardio Check up

Yesterday was the longest day of my life. Autumn woke with a temperature of 101.5 so we called the Pediatrician and got her in before her scheduled 6 month cardio check up. They said she has a mild ear infection and they ran a Catheter to check her urine. They sent us on our way with an antibiotic that would treat both an ear infection and a urinary tract infection if it came back positive. The inital check came back negative and they said she was well hydrated and that it could be a false negative and they would do a culture on it.
Cardiologist office took forever but what is really ontime at UVA.....you guessed it. Nothing. Her appt was at 1:10 and the doctor left the room at 3pm after about a ten - fifteen minute consult. They did an EKG but not an ECHO. He said he was glad to see that Autumn had a fever because it makes her heart rate more rapid and easier to listen to. Zack and I had noticed a rapid heart rate for the last few days but she has also been teething and having a mild fever until yesterday. So he said her heart sounds perfect and that she has only a 10% chance of any further complications. The complication that we are watching closely is the veins growing with her and not narrowing from scar tissue. He said he feels that she is definitely in the 90% side but they will continue to monitor her. He said with the ECHO they took at her last visit they did not feel it was necessary because her repair looked perfect. Autumn was a wreck during all of this. She was not feeling well and was stripped down to a diaper for over an hour trying to cool her down. Her skin was so hot that we were worried about her all day. She did not want to eat or really do anything. By the time we got home yesterday evening she was on the lethargic side and did not want to be touched or moved. We took her temp and it came back at 103.6 so we called the after hours trying to track down her doctor. We were debating a trip to the ER. We watied 20 minutes and took it again and it was up to 104 so we got her into a luke warm bath to help cool her and I had to get in with her. She cried the entire time. After sitting for awhile we got out and took her temp again and it was down to about 102.7 so what a relief. She had been on motrin and tylenol alternating every three hours and it just wasn't helping. I think the antibiotic finally kicked in. So we decided to monitor her over the next few hours and the fever had finally broken and started to consistantly come down. By 7:30 she was eating some apples and cheerios and starting to talk to us again. At that point I was finally able to breathe. She was more herself and it was great to see. We woke up a few times over night and I kept a close eye on her body temp and she seemed fine. By morning her temp was a perfect 98.6. We finally got a call back from the doctors office, they never called last night~ not sure what to think about that other than it wasn't our location but another office of theirs, anyways the doctor said that the urine sample came back positive so at least we know why she had such a high temp. She will be on the antibiotics for the ear infection and UTI for 10 days then go back to have another Catheter ran to test her again to make sure it is gone. We set her 9 m0onth check up for the same day. We just have to wait another two weeks and go back again.
We were also told by the cardiologist that we can discontinue the synagis treatment. That she is a normal little girl and no longer requires it. I thought that was the best news of the day. To me just knowing that she needed extra vaccinations just in case always made me consider her at risk still. But now if she is healthy enough to not need it then we can all see her as normal. Not like we didn't already but it won't be in our minds constantly.

Time flies

I can't believe it is February already! What have we been doing? Well Autumn had her Synagis appt on the 30th of January and weighed 18lbs 8 oz. Then a week later we had to turn around and go back to the doctor with a temperature of 101.4. We find out she is 18lbs 4 oz now and has double ear infection. They gave her an antibiotic and we seem to be doing better. Over the last day or two she has started to pull at her ears and hair again so I am wondering if there is left over pressure or what is going on. She isn't running a fever or super fussy about it so hopefully it is clearing out. Still not sleeping the thru the night yet. Pretty sure it is because we have been so busy that we don't have a set schedule anymore that doesn't end up getting adjusted every other week. We are working on that one still.
She has discovered that she can feed herself so no more baby food. She just clamps her lips shut and turns her head if you try to feed her anything. Even if she wants it she will not open until you set it down for her to pick up herself. She is trying new foods everyday to see what she likes. So far it is the gerber lil cruchies I think is what they are called. They are flavored cheetos. And she is an adict! She likes her pears still and bananas, but not a fan of lemon. Yeah, I just had to see that face. She did try sweet potato fries this weekend and she seemed to like them, the ones that did not end up on Pig 'N' Steak's floor. (Funny name but good BBQ.) Autumn is such a sweet little girl. She has discovered that she can just lay her head on your shoulder and watch everyone. She loves giving hugs and kisses. She started to clap over the weekend and is really good about cheering herself on. I have been trying teaching her just a few things in sign language and tonight at dinner I couldn't tell if she was asking for more or applauding that she was eating. She would finish the last bite and start clapping then her face would light up when I would sign more and put more on her plate. We will have to wait and see on that one. Oh she climbs our stairs already. From bottom to top the whole way up, very slowly but she loves every minute of the adventure. Mickeys Clubhouse is her favorite cartoon and right now chase is her favorite game.
See how busy we have been. No time to blog I am too busy chasing Autumn around and trying to keep up!